FOSDEM Schedule 2021
Open Source Design

Own Your Healthcare Experience: An Open Source Path
Juhan Sonin
<p>We demand that patients own their data. We demand that healthcare services are open source. Because healthcare is too important to be closed.</p>

We are getting screwed.

We’re dying younger,

maternal mortality is ticking up,

and big money is running healthcare,

at our expense.

The data that drive our care,

the algorithms that dictates our parents care, our neighborhood’s care, our nation’s care,

and the everyday services we rely on,

feed on our experiences,

are governed by black boxes and crooked biases,

and are owned by others.

It’s our health.

Our very lives are at stake.

We demand that patients own their data.

We demand that healthcare services are open source.

Because healthcare is too important to be closed.

See how we, the atomic units of the health system,

can bend it back to the light.

Additional information

Type devroom

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